There are 156 members (Scroll Down For List By State)
Markers:
Brain tumor organizations without non profit status = Individual or Organization with nonprofit status pending
Organizations with nonprofit status = Non-profit Organization

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The following organizations are members:(Scroll down for list of individuals who are members!)

 Location  Organization
Name
 Comments
Madison,
AL 
 I Could Be Your Child
256-216-8770
Send Email     www.icouldbeyourchild.org

I Could Be Your Child
  I Could Be Your Child has been organized to increase awareness of pediatric brain tumors (primarily dipg), provide funding for research and to provide support to children and families diagnosed with a pediatric brain tumor. I Could Be Your Child is a tax-exempt, 501(c)(3) organization.
Granada Hills,
CA 
 We Can, Pediatric Brain Tumor Network
3107393433
Send Email     www.wecan.cc

We Can, Pediatric Brain Tumor Network
 
Santa Monica,
CA 
 UCLA Department of Neurosurgery
(310) 825-5111
Send Email     www.neurosurgery.ucla.edu

UCLA Department of Neurosurgery
 
US Air Force Academy,
CO 
 Rachael's Ribbons of Hope Foundation
719-302-6042
Send Email     www.rachaelsribbonsofhope.org

Rachael's Ribbons of Hope Foundation
  Rachael's Ribbons of Hope Foundation is founded by family and friends of Rachael Newton.  Our Mission is to raise funds for brain tumor research and heighten public awareness of this devastating disease in the hopes of finding a cure.

Rachael is my daughter and I feel blessed to have had a daughter like her, she is missed more everyday.  I wish she was here to help us with this foundation but I know that she is in Heaven.  My hopes are to help other children and parents so that they have more time with their families.  No parent should lose their child!

We are partnered with the Brain Tumor Institute at Children's National Medical Center in Washington D.C. [... MORE ...]
Clearwater,
Fl 
 Miles For Hope
727-647-6548
Send Email     MilesForHope.org

Miles For Hope
 
Coral Springs,
FL 
 Florida Brain Tumor Association
954-755-4307
Send Email     www.fbta.info

Florida Brain Tumor Association
 

         OUR MISSION

  • To provide hope,support and education to brain tumor survivors and their families
  • To conquer brain tumors by funding research into their causes and cures
  • To enrich the quality of life of those touched by brain tumors

         The FBTA has become a major force in the brain tumor community. We have hosted many 3 days conferences,seminars & meetings, attracting thousands of

          survivors, families & friends & health care professionals in the US & Canada. We are proud to have the most renown presenters in the brain tumor community

          travel to FBTA conferences from across the country. The next FBTA conference is Jan. 23-25,2009, West Palm [... MORE ...]

Viera,
FL 
 Just One More Day for Love, Hope & a Cure
321-698-8538
Send Email     www.JustOneMoreDay.org

Just One More Day for Love, Hope & a Cure
   

Just One More Day…
is committed to increasing awareness about diffuse intrinsic pontine gliomas, funding  research, and providing information for the families of children who are living with this type of cancer.

Douglasville,
GA 
 The Charles Warren Brain Tumor Awareness Foundation, Inc.
770-942-0639
Send Email     www.charleswarrenfoundation.org

The Charles Warren Brain Tumor Awareness Foundation, Inc.
  Thank you so much for contacting us concerning the UFAB.  As I have tried to figure a way to increase the awareness of brain tumors, I have often considered that the only way we will ever be truly successful is if we could somehow combine forces with these large, super organized groups.  Now we can and I am very excited!  Please let me know how we can be involved.  We will place a link  to your organization on our website as well as a note about the movement. 
Des Plaines,
Il 
 LAAF - Lori Arquilla Andersen Foundation
904-334-0124 / 847-561-1199
Send Email     www.laafinc.org

LAAF - Lori Arquilla Andersen Foundation
 

Visit: www.youtube.com/laafinc and www.laafinc.org/lori-erik

 

LAAF was founded in memory of Lori Arquilla Andersen by her mother, Linda Magiera – IL, and her sister, Lisa Dodge – FL; to fulfill her wishes of making a difference in the lives of other brain cancer patients.  We are a 501c3 not for profit public charity and donations made are tax deductible.

 

Lori Arquilla Andersen, a Chicago area native, was diagnosed in 2003 with the worst type of brain cancer (GBM grade IV) just 3 months after her marriage. She fought a courageous 22 month battle and was able to remain positive until the very end. She lost her battle on 7-5-05 at the young age of 35. Even [... MORE ...]

Germantown,
MD 
 Childhood Brain Tumor Foundation
877-217-4166
Send Email     www.childhoodbraintumor.org

Childhood Brain Tumor Foundation
 
Salisbury,
MD 
 HOPE With Support, Inc.
410-443-1342
Send Email     www.hopewithsupport.org

HOPE With Support, Inc.
 

HOPE With Support's "grey ribbon" carries a daisy for HOPE; HOPE for

Holland,
MI 
 Unlocking Brain Tumors, Inc
(616) 335-9050
Send Email     unlockingbraintumors.org

Unlocking Brain Tumors, Inc
 

UnlockingBrainTumors.org was launched in September 2007 by Stephen Coffman, a former business leader who left the human resources marketplace after being diagnosed with cancer and was subsequently diagnosed with a brain tumor. Money raised by UnlockingBrainTumors.org is directed toward novel brain tumor research, exciting novel treatment targets and improved treatment choices; all funds raised are allocated in streamlined fashion, using existing channels and foundations with the goal of distributing money quickly and fairly, to those who can operationalize it quickly, and who limit their overhead to make more money available for research and treatment.


UnlockingBrainTumors.org is a registered 501(c)3 public charity, and to date the organization has directly raised or assisted in the raising of over $100,000 to [... MORE ...]

Raleigh Durham,
NC 
 Preston Robert Tisch Brain Tumor Center

Send Email     www.cancer.duke.edu/btc/

Preston Robert Tisch Brain Tumor Center
 
Oceanport,
NJ 
 The Kortney Rose Foundation
(732)222-1491
Send Email     www.thekortneyrosefoundation.org

The Kortney Rose Foundation
 

I believe that in the long run if all of us band together where legislation is concerned we will make a larger impact. This is great! Please keep your grey ribbon as I already have one and would rather have you give one to someone who doesn't.

Thanks,

Kristen Gillette

Roseland,
NJ 
 Peter A Bednarski Fund for Brain Tumor Research Inc
973-403-8306
Send Email

 
Wall,
NJ  
 Monmouth and Ocen County Brain tumor Support Group
609-758-0806
Send Email     www.njbt.org

Monmouth and Ocen County Brain tumor Support Group
 
Chappaqua,
NY 
 Pediatric Low Grade Astrocytoma Foundation
914-762-3494
Send Email     www.fightplga.org

Pediatric  Low Grade Astrocytoma  Foundation
  Finding kinder/gentler treatments and a cure for all forms of pediatric low grade astrocytoma (plga) is the central mission for the PLGA Foundation. To do so, we need to raise not only funds, but also awareness about the devestation that these brain tumors can bring to their young victims. Researchers are beginning to take notice of our efforts, and we will continue to try to attract the best and brightest in the medical field to study our disease.
Hewlett,
NY 
 Musella Foundation For Brain Tumor Research & Information, Inc
5162954740
Send Email     virtualtrials.com

Musella Foundation For Brain Tumor Research & Information, Inc
  The Musella Foundation raises funds for research and provides education and support to families dealing with all types of brain tumors: Adult / Pediatric, common and rare, Malignant and benign as well as metastatic. We are a 501(c)(3) nonprofit public charity and willing to work with anyone to help speed up the search for the cure!
New York,
NY 
 Voices Against Brain Cancer
516 633 0800
Send Email     www.voicesagainstbraincancer.org

Voices Against Brain Cancer
 
Avon Lake,
OH 
 Smiles For Sophie Forever
440 930-5091
Send Email     www.smilesforsophieforever.org/

 
Boardman,
OH 
 Tommy Detesco Fund for Adolescents and Young Adults
330-729-9228
Send Email     www.tommydetescofund.com

Tommy Detesco Fund for Adolescents and Young Adults
  The Tommy Detesco Fund is meant to address those individuals living with brain tumors during adolescence and young adulthood. Tommy was my brother, and he lived with brain tumors from his first surgery at age six until his death 8/31/2007 at the age of thirty-two. His story is inspirational and gives others hope to never give up for a cure!
Cincinnati,
OH 
 Cure Starts Now
513-478-8990
Send Email     www.thecurestartsnow.org

Cure Starts Now
  The Cure Starts Now Foundation is an IRS 501C non-profit charity dedicated to educating, aiding and funding the search for a cure for brainstem glioma and other forms of pediatric brain cancer in the hopes of curing all cancers. Our fight begins with the children, typically ages 5-7, who are most commonly afflicted with this debilitating disease. Their prognosis is considered "dismal" by cancer experts with less than 1-10% of all confirmed victims living beyond 18 months from diagnosis. Sparing their cognitive abilities, brainstem glioma slowly robs children of their motor functions resulting in partial paralysis, loss of voice and sight and finally ending with an inability to eat and breath. It is both heart wrenching and painful as they [... MORE ...]
Columbus,
OH 
 Ohio State University Medical Center
6142922177
Send Email     medicalcenter.osu.edu/

 
Lancaster,
OH 
 Kevin Mullin Memorial Fund for Brain Tumor Research
740-756-7987
Send Email     www.lemonhead.org

 
South Euclid,
OH 
 Mission4Maureen

Send Email     www.mission4maureen.com

Mission4Maureen
 

"No one can do everything, but everyone can do something."

When the announcement was made that Senator Edward Kennedy had brain cancer it seemed that the whole world paid attention.  Every news agency and newspaper led with that headline and stories flooded the internet.  As a result, the Mission4Maureen website received over 26,000 hits over the past 4 months. 

Many letters of inquiry have been received and of course the stories are both sad and familiar.  Most letters were followed by applications for assistance.  Mission4Maureen intends to assist all who qualify but we need help. 

Currently there are 18 applicants and [... MORE ...]

West Chester,
OH 
 Lifestream for Kids
513-787-7084
Send Email     www.lifestreamforkids.com

 
Oklahoma City,
OK 
 Oklahoma Brain Tumor Foundation
405-843-4673
Send Email     www.okbtf.org

Oklahoma Brain Tumor Foundation
 
Ambler,
PA 
 Wylie's Day Foundation
215.643.2181
Send Email     www.wyliesday.org

Wylie's Day Foundation
  Wylie's Day Foundation was created in 2005.  Wylie Strotbeck was 11 years old when diagnosed with a medulloblastoma.  He was optimistic and the bravest hero we ever knew.  His wish was to be "normal" and someday have a family.  His battle ended 16 mos. after diagnosis.  There were no available treatments left after having tried everything the best institutions and the best docs had to offer.  Our mission is to fund cutting edge research towards a cure for pediatric brain tumors.  No child should have to suffer this devastating disease and most difficult journey.  We strive for the DAY that a cure can be found.  We also fund child life oncology programs.
Philadelphia,
Pennsylvania 
 University of Pennsylvania Department of Neurosurgery
215-615-4379
Send Email     www.uphs.upenn.edu/neurosurgery/

University of Pennsylvania Department of Neurosurgery
 
Marietta,
SC 
 The Brain Tumor Awareness Organization
864-836-4609
Send Email     www.braintumorawareness.org

The Brain Tumor Awareness Organization
  We are excited to be apart of this movement. Together we can make an impact! We are engaged in raising awareness in South Carolina, providing a single source web site of information and support so that everyone that is affected by this disease will find or contribute to the support in their communities.
Carrollton,
TX 
 The Nick Gonzales Foundation for Brain Tumor Research
469-438-7001
Send Email     www.nickgonzalesfoundation.org

The Nick Gonzales Foundation for Brain Tumor Research
  The Nick Gonzales Foundation for Brain Tumor Research funds an annual research grant through the National Brain Tumor Foundation, www.braintumor.org.   The 2008 Nick Gonzales Research Grant of $50,000 was awarded to M.D. Anderson Cancer Center on June 20, 2008.   Please visit our website for upcoming fundraising events and the 2nd Annual Nick Gonzales Charity Golf Tournament scheduled for May 8, 2009 in Flower Mound, TX (just north of DFW Airport). 
Ashburn,
VA  
 The Brad Kaminsky Foundation for Brain Tumor Research
7037299897
Send Email     tbkf.org

The Brad Kaminsky Foundation for Brain Tumor Research
  The Brad Kaminsky Foundation is dedicated to Raising Awareness of Brain Tumors and Funds for Research so that Effective Treatments and Ultimately, A CURE, may be found. We are also dedicated to providing support and resources to those affected by this horrible disease, and will work with other organizations for the betterment of all patients and families so as to bring about a cure as quickly as possible.
Ashland,
VA 
 Brown Bag For A Cure
(804) 296-4590
Send Email     brownbagforacure.org

Brown Bag For A Cure
 

"Brown Bag For A Cure" ....is a simple, unique that supports pediatric brain tumor research...Brown Bag your lunch and donate what you would have spent on lunch out. Our 501 (c) (3) status is pending.

 

Glen Allen,
VA 
 Brain Tumor Resource And Information Network
1-800-900-6195 code 48
Send Email     www.brainsite.org

 

HI Everyone:  Glad to become a member.  We do have a logo, but had difficulty putting it on your browser.  Please let me know how to do this.  We established our all volunteer non-profit charity in 2005 to improve the quality of life of brain tumor patients, increase public awareness, and raise funds to aid in the research to eliminate the disease.  We provide information packages to newly diagnosed patients and have given out more than 500 in the Richmond, VA area to date.  I was diagnosed in May of 2003 with an Oligo-Astocytoma, Grade 2.  I go to the Preston Robert Tisch Brain Tumor Center for Treatment.  I am a member of the Society of Neuro-oncology and attend all